Little Mia Tomor is battling to cope with numerous health problems after suffering severe brain damage during birth.
The four-month-old, who was born in Gloucester and lives with her parents in Coopers Edge, Brockworth, has to be tube-fed because she can’t suck or swallow.
It is just one of a number of problems she has that mean she needs 24/7 care.
That has led her mum and dad, Petra and Laszlo Tomor, to launch this public appeal to raise £6,000.
They need the money to pay for treatment that is not available on the NHS, and to help improve Mia’s quality of life.
The couple, who came to the UK from Hungary to seek a better life seven years ago, are pleased that the appeal has so far raised more than £3,000 but are keen to reach their target.
Mia was without oxygen for a period of time when she was born at Gloucestershire Royal Hospital. She has been diagnosed with grade three Hypoxic Ischemic Encephalopathy.
The condition can cause numerous neurological difficulties and long-term disabilities, affecting the ability to perform some of life’s simplest activities.
Petra said: “Unfortunately, as we are at the moment, its looks like Mia has an issue with her movements which relates to cerebral palsy, an issue with her hearing, vision and having no swallow or gag reflex. That means she has to be tube-fed.”
Mia is on six different medications - two for fits, one for muscle spasms and three for reflux.
She is also being given a food and drink thickener and has a patch to reduce her secretions.
Petra said she and her husband did not want to appeal for people’s help but felt they had to for their daughter’s benefit.
The 30-year-old said: “We have found a kind of therapy which could help with her movements to develop for the future. It’s called the Deveny Method.
“The NHS is supporting us with physio but only once every five weeks and only for one hour which doesn’t help with her movements, muscle pain or anything at all.”
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Mia was born by Caesarean section and, because she was so poorly, spent the first six weeks of her life in hospital.
The couple said they were really happy to get her home but were also scared because doctors did not expect her to live for long.
They added that the situation had been like a dream becoming a nightmare.
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